The Cheshire branch has three Association Visitors who support people with MND in the region and their loved ones.
They have been carefully selected for the role and have undergone a thorough training programme. They usually have contact with people over the phone, via e-mail or can visit them in their own home.
Following a diagnosis of MND it can sometimes be difficult for people to know where to turn. The Association Visitor can give you the opportunity to talk about your feelings and let you know what help is available in your area. This can help to reduce the sense of isolation some people affected by the disease can experience.
What you can expect from your Visitor:
- free and confidential emotional support for as long as it is required
- practical advice and accurate information that is tailored to meet your individual needs and at a time when you request it
- knowledge of the effects of the disease and how the Association can help
- information about other sources of help
- liaison on your behalf with the Regional Care Development Adviser and the local Branch or Group
- awareness of and help to meet the changing needs of you and your family
- help for you and your carer(s) to identify problems as they arise and discuss with you your choices for how they might be managed
- follow up and support requests made by the RCDA for help from the statutory/voluntary agencies or MND Association National Office
- acceptance and respect of your choices and wishes
If you would like to access the support of one of our Association Visitors please contact Joel on 01625 525409 in the first instance.